ACT

A data platform for Rheumatic Heart Disease

ACT is a case management tool designed to support the care of patients with rheumatic heart disease.

It helps participating clinical teams capture standardized patient data, manage longitudinal follow-up, monitor critical care indicators, and use data to improve patient outcomes.

Patient lying on medical bed getting an echocardiogram ultrasound on chest by a healthcare worker.

What ACT does

ACT supports both individual patient care and population-level management. It gives clinical teams a structured way to record diagnosis, treatment, follow-up, prophylaxis, procedures, outcomes, and key clinical indicators over time.

By standardizing data across sites, the platform also supports quality improvement, benchmarking, and ethically governed research.

Three medical professionals reviewing information on a laptop in a clinic room with healthcare charts.
Capture
Laptop and papers on a wooden desk with data fields for patient demographics, diagnosis, and medications.
Standardize
Two healthcare workers reviewing data on a laptop with medical files on the table in a clinic.
Improve

RHD care cascade

The RHD cascade allows ACT users to visualize the number of patients that are adherent (or not) to their secondary antibiotic prophylaxis (SAP) medication. Adherence on SAP is critical for managing RHD, and the ACT dashboard and tools within ACT alert users to patients that are lost to follow up or falling behind on their SAP medication.

RHD care cascade

What makes ACT unique

ACT is a first of its kind RHD case management tool that supports clinical teams across the full RHD care pathway, from individual patient follow-up to population-level planning. To make the platform easier to understand, its core features can be grouped into four practical areas.

Patient care and follow-up

Patient summary cards

Patient summary cards display vital information at a glance, including adherence to prophylaxis, upcoming cardiology follow-ups, pending interventions, and overdue care items.

Streamlined consultation forms

Consultation forms consolidate key visit information into a single workflow. Allergies, medications, interventional recommendations, cardiac complications, and prophylaxis prescriptions can carry forward to support continuity of care.

Cardiac intervention tracking

The platform captures cardiac interventions, including surgeries and interventional catheterizations. Dynamic fields prompt clinicians to record procedure-specific information consistently.

Outcomes tracking

ACT supports post-procedural outcome tracking, including discharge and 30-day follow-up information. The platform flags missing critical information so teams can complete the patient record.

International Normalized Ratio (INR) monitoring

For patients on warfarin, the platform supports INR monitoring and helps clinicians review trends over time alongside dosing decisions.

Population management

List view for patient cohorts

Clinicians can use list view to review larger patient groups more efficiently, sort by priority indicators, and identify patients who need attention.

Broader cardiac diagnosis capture

The platform can support the capture of congenital and acquired heart diseases beyond RHD, where local sites need a more centralized tool for cardiac patient management.

Screening data

ACT can capture population-based screening data, including the number of people screened, demographic breakdowns, and the number of positive cases identified.

Procedural waiting list

The waiting list feature helps teams review patients awaiting procedures, sort by priority or waiting time, and plan referral or procedural pathways.

Quality improvement and dashboards

Dashboards and care cascade monitoring

Dashboards help teams visualize patient populations, review key metrics, monitor the RHD care cascade, and identify patterns that can inform site-level quality improvement.

Critical data flags

Critical data flags help clinical teams identify missing information that may affect patient care, reporting, or research readiness. These flags support stronger data completeness and more consistent follow-up.

Site administration and supply planning

Clinic and user management

Site administrators can add users, assign role-based access, and manage clinics participating in patient care through ACT.

Stock management

Where used, stock management tools help clinics track prophylactic antibiotic supply and estimate future needs based on assigned patients.

Who uses ACT?

The case management tool is used by a range of stakeholders across the RHD care continuum:

Clinicians

Clinicians use ACT to manage patient care, track follow-up, review treatment histories, and identify patients who need clinical attention.

Health systems

Health systems use ACT data to strengthen service planning and monitor care delivery. The same data helps identify gaps and supports more coordinated RHD programs.

Global health partners

Global health partners, including NGOs, funders, and public health organizations, can use aggregated evidence to understand RHD burden. That same evidence helps clarify investment needs and policy priorities.

See ACT in action

Select an image to view it in more detail.

What the ACT Global Network provides

We support local sites with the tools, guidance and connections needed to integrate and use ACT effectively.

What we provide:

  • Access to ACT
  • Consultation on integrating and using ACT within local health systems
  • Training on ACT
  • Ongoing platform support
  • Opportunities for shared learning
  • Access to a network of clinicians and health administrators focused on RHD diagnosis and care

What we do not provide:

  • Funding to implement and operate ACT locally
  • Staff to manage and use the platform
  • Equipment such as computers and tablets
  • Any other local resources required for implementation

Frequently Asked Questions about ACT

How can a site access ACT?

Access is available to local clinical sites. Institutions interested in joining should contact ACT Global to discuss eligibility, governance, onboarding, and training.

Is patient data secure in ACT?

ACT is designed to support secure, privacy-conscious data management across participating jurisdictions. Final data protection wording should reflect ACT Global’s confirmed legal and regulatory framework.

Can ACT data be used for research?

Participating sites own their own data and can access it and use it freely including for research subject to local ethical governance.

Does a site need technical infrastructure to participate?

The platform is designed for use across diverse clinical environments, including resource-limited settings. Specific requirements should be confirmed during onboarding.

How is data standardized across countries and health systems?

Participating sites enter data through common fields and definitions. This helps ACT Global support comparison, benchmarking, and shared learning across different health systems.

Who owns the data entered into ACT?

Participating sites retain ownership of their own patient data.

How long does it take to onboard a new site?

Onboarding timelines vary by site readiness, approvals, data governance requirements, and training needs. ACT Global provides support throughout the process.

What training is available for clinicians using the platform?

ACT Global provides training videos, guidance materials, and support for participating sites. Training resources are available through the Resources section.

Can the ACT be used for individual patient management as well as research?

Yes. Clinicians use the platform day-to-day to track individual patient histories, treatment, and follow-up. Research use of aggregated data is a secondary benefit, not the only purpose.

Interested in using ACT?

Clinical sites, health systems, and research teams working in RHD care can contact ACT Global to discuss participation.